When Farrah Roth was 27 weeks pregnant, she and the doctors thought her unborn son was just being cute by sticking out his tongue on the ultrasound scans.
Farrah gave birth to baby Baker via emergency c-section eight weeks early. The very first thing the doctor did was comment on the boy’s unusually large tongue — double than the normal size.
As it turned out, Baker was born with Beckwith Wiedemann Syndrome (BWS), a rare overgrowth disorder that affects one in 14,000 babies.
Baker was also born with a cancerous mass on his stomach, since his intestines and kidney grew outside hid body. After three surgeries and five months of chemotherapy and resection, Baker went into remission.
There was still the dangerous issues posed by his oversized tongue that obstructed his airways, causing him to hold his breath. The incredibly brave baby was also fitted with a trach.
The Roth family fears they’ve racked up over two million dollars in medical bills.
They hope Baker’s next surgery will reduce the size of his tongue. He needs an operation that will allow him to make sounds, communicate better, and eat more types of foods.
If you would like to help Baker in any way, please visit his official GoFundMe page.
Source : https://www.littlethings.com/toddler-born-with-giant-tongue/